Supporting the PKU Lifestyle

How to help children maintain diet and lifestyle at different stages in life and development

Click here

Kolton manages PKU and daily life

Kolton has PKU. Although there are parts of his life that are different, he is still a happy, healthy, and smart kid.

Click here

Cooper's PKU Story

"The specialist had called us on Thursday to let us know that something was wrong..."

CLICK HERE

Working Globally

Raising Awareness about Newborn Screening and PKU in Brazil

CLICK HERE

ESPKU Meeting 2012

European guidelines on treatment of PKU

CLICK HERE

Biggest Healthcare Challenges for PKU Patients

The biggest issue really is a lack of coverage.

CLICK HERE

Taking Responsibility for PKU Management

Understand what the treatment is and why those things are important for you.

CLICK HERE

Newborn Bloodspots Save Lives

Helping babies and their families.

CLICK HERE

Raising a Child with PKU

How two moms, with sons born 20 years apart, learned to cope.

CLICK HERE

Families appeal for access to treatments for Canadian PKU patients

Continued government support to ensure they can access existing and new treatment options to help them better manage their disease. 

CLICK HERE

My PKU Life

My name is Kevin Alexander, I'm 31 years old, and I have PKU, also known as Phenylketonuria. This is my story.

CLICK HERE

The Emotional Toll from PKU

Adam Johnson, President of the Metabolic Disease Foundation, details the emotional toll PKU can exact on people living with the disease. He shares important tips on how to cope.

CLICK HERE

PKU

A short documentary on the genetic, metabolic disorder Phenylketonuria (PKU.) Gives a brief overview.

CLICK HERE

PKU - Newborn Screening on TV 3

Grant Hall on TV 3 - talks about PKU and his diet.

CLICK HERE

---