For 11 years, James Kabindu and his wife Alice Ng’endu didn’t know what condition their two special-needs children had.
After having what seemed to be a normal healthy child, James and Alice progressively became dismayed at the health problems that plagued their child.
To their dismay their second child, Angel, started to exhibit the same symptoms as their first child.
In 2008, the couple had Angel. “She started showing the same symptoms at nine months that George had showed. It was hard for us to accept that we had another child with special needs.” Doctors who assessed Angel drew the same conclusion. She had autism. George’s and Angel’s convulsions became more frequent as they grew older. “Each time they convulsed, a part of their brain got damaged, so they became more intellectually disabled and more dependent.”
Thanks to help from family and friends James and Alice eventually discovered their children had PKU (Phenylketonuria).
James and his wife desperately wanted answers for George and Angel’s condition. They held a fundraiser in 2015 to finance a medical trip to India. Friends, family and well-wishers gave them Sh1.6 million.
Read the Full Story at: Daily Nation
7/26/2022 12:41:32 pm
Wow!! What a heartbreaking story. I hope your family is thriving today. PKU is very manageable. You just need to find what works for each individual and then be diligent and consistent in your PKU management. My brother and I have PKU. We were both born in the 50’s when they didn’t know what PKU was so my story is similar to yours. My mom was feeding my brother at three months when he began having seizures. Do I can emphasize when your experience
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