Watch this inspiring interview with Amy Oliver, a mother of two children diagnosed with PKU. Not only has Amy faced these challenges head-on, she also founded the Intermountain PKU and Allied Disorders Association.
For 11 years, James Kabindu and his wife Alice Ng’endu didn’t know what condition their two special-needs children had.
“One of my dreams is just to take Norah and get ice cream with her,” Eddie Kasprzyk said. “Just be able to enjoy a slice of pizza. Just to be a kid.”
To anyone who sees her running, she's just another jogger getting a workout in. They wouldn't know that she's out there running for everybody else who has faced similar struggles with PKU — the families who don't have insurance, those who can't afford the special food to stay on their diet, and those who struggle to get to doctor's appointments.